Bringing back some memories (Wordless Wednesday)

December 24, 2008 at 1:43 am (Children, Family, Life, photography) (, , , , , , , , )

Levi Feb. 2005

Levi Feb. 2005

My Granny Feb. 2005

My Granny Feb. 2005

Leslie & Levi

Leslie & Levi

Daddy & Erin July 2007

Daddy & Erin July 2007

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Where does your special needs child spend time-out?

December 22, 2008 at 3:41 pm (ADHD, autism, Children, home school, homeschool, Life) (, , , , , )

This is such a sad story and I felt it needed to be circulated more.  Please read this article and ask your school what happens if your special needs child needs to be removed from the classroom.

I know there are times when the safety of others will mean the removal of children having tantrums or being violent.  I believe the removal should not mean putting them in solitary confinement somewhere.  These children still need CONSTANT supervision.

This just reinforces my decision to homeschool Levi.

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Is the diet working?

December 19, 2008 at 3:44 pm (ADHD, autism, Children, Life) (, , , , , )

The last few days have been really tough.  I guess the last few weeks actually.  Levi’s behavior is crazy!  Since Monday, the school has called me 3 different times.  His actions have sometimes become violent and totally uncontrollable.  Maybe we are trying too many things at once.  Here’s a recap.

  1. Daytrana patch, one patch per day starting at 7am and coming off no later than 3pm.  The first 4-5 days we saw improvement in his hyperactive behavior, but he lost his appetite.  By Day 7 he was having “spacey” moments, some crying for no reason & loss of appetite.  By Day 9, which was the last day we used it, he was totally lethargic and non-responsive.
  2. We began implementing the GFCF diet.  The first week & a half, we started phasing out the gluten.  The next week & a half, we took casein out.  He has been on the diet fully for about 2 weeks with only one “free” day.
  3. We met with his pediatrician to discuss the results of Daytrana, and to inform him that we had implemented the GFCF diet.  We were told that there is not much research to support the diet.  He did not tell us not to do it, but we didn’t get much support about it.
  4. The pediatrician recommended we try putting Levi on Adderall.  Since beginning this medicine Levi has had bad tummy aches and awful mood swings with very violent episodes.  Now he has become defiant with his teachers and has been very disrespectful.  He took the last Adderall Sunday (5 days ago).

So, what is working and what isn’t?  It doesn’t seem like anything is working!  It seems like his behavior is worse than ever.

I really want to continue with the GFCF diet and give it a chance to prove itself.  I found this informative website and even chatted live with an experienced parent who assured me that this “worse” behavior is proof that the diet is working.   Whew!  Just another view to confuse my already befuddled mind.  She told me to hang with it for a couple more weeks.  By the time Levi heads back to school after Christmas break we should be able to see dramatic positive changes.  We shall see!

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Wordless Wednesdays

December 17, 2008 at 6:39 am (Children, Family, Farm, photography) (, , , , , , , , , )

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I’m at a loss.

December 14, 2008 at 11:34 pm (ADHD, autism, Children, Family, God) (, , , , , )

Levi got kicked out of his class tonight at church.  I’m sitting in the sanctuary, listening to our pastor, and faintly I hear something that just catches my attention.  My instinct has already told me what I was trying to figure out.  I knew something was wrong with Levi.  Then, I hear him louder, crying and screaming.  I took off out the door and down the hall.  When I got to him he was not crying, not screaming, not doing anything but just standing there.  I asked him what was wrong, what happened?  He told me to leave him alone.  I get him over to a couch and I’m trying to pry details out of him.  His teacher comes out into the hall after a few minutes and says that he has had 4 meltdowns and this last one was violent, with him kicking chairs.  She said she removed him from the class because she was afraid he was going to hurt someone.

My first thought was that I had told the teacher that if there was any sign of trouble, to come and get me.  So, 4 meltdowns and an act of violence LATER, I find my son out in the hallway by himself.  But my head is screaming “I TOLD YOU TO COME GET ME!”  It could have been avoided!  Why don’t people listen to me about MY OWN CHILD!?!?!?

My second thought was this would have never happened if it had been a “normal” Sunday night.  Usually Tommy helps in the class so that he can keep an eye on Levi and detour any difficulties.  Tommy is out of town right now, so his absence probably had a twofold affect on Levi’s behavior tonight.

Third thought:  I should not have let Levi have a “free” day from his GFCF diet.  His Sunday School class was having their Christmas party, so I told Levi that he could enjoy a piece of cake and goodies from the party.  How much did this wheat & casein & sugar & preservatives & CRAP affect Levi’s behavior tonight?

How am I supposed to answer that?  Really?  I feel like I have no clue anymore.  I’m frustrated and hurting and scared for my little boy and his future.  I just wish someone could give me the answers.  I’m at a total loss.

Psalm 55:22:
22Cast thy burden upon the Lord, and he shall sustain thee: he shall never suffer the righteous to be moved.

Lord,

I am casting this upon You.  It’s obvious I can’t do this by myself.  Please Lord, give me the wisdom and the knowledge to teach Levi.  Give me the insight to anything that I can do to raise him like I should.  Please take this burden from me Lord, it’s crushing me and I can’t handle it anymore.  Please give me patience & understanding.  Please take this anger and frustration and fear away from me.  If there’s something that can be healed with Levi, please Lord, heal his body, heal his mind, cradle his spirit and keep it safe.  I praise you Lord, for the peace and understanding and joy that I know will follow.  I love you Lord!

In Jesus’ name I pray,

Amen.

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Wordless Wednesdays

December 9, 2008 at 9:44 pm (Children, Family, Life, photography) (, , , , , , )

So serious!

So serious!

Come on baby, smile!

Come on baby, smile!

There's that beautiful smile!

There's that beautiful smile!

Such a cutie!

Such a cutie!

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Sweet sisters

Sweet sisters

My cutie

My cutie

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Yesterday updated

December 9, 2008 at 12:22 pm (ADHD, autism, Children, Life) (, , , , , )

I was really sad and stressed yesterday after Levi’s meltdown.  I was feeling like a failure and my heart was breaking for my son because it seemed like we would never get through to him.

Now I am just angry.  No, really, I’m pissed!  The more I find out about this woman that the school allowed into my son’s classroom,  the more I want to just rant and rave and scream at them “How could you allow this to happen?”  It is all your fault that my son had a meltdown!

The assistant principle has assured us that this substitute will never be called back to their school.  But then I think, well that’s fine and good, but what about other schools where some patience and common sense might be needed?  As more of the story unfolds, Levi was made to feel ostracised and belittled because he brought in a certain snack.  The teacher next to their room overheard comments made by the substitute such as ” I just can’t handle this!”  and “You are the meanest class I’ve ever had!”  I mean, my gosh, these are 5 & 6 year olds!  This woman obviously had no business being a substitute teacher for any age!  After speaking with his teacher this morning I found out that there had been prior problems with this woman and that the school had vowed before to never call her back.  But, six teachers were absent, so they felt they had no choice??  That’s BS!!!!  I would rather they have called me and I remove my son from the class before they exposed him to someone that they had problems with before.

I know that life happens.  I know that Levi will HAVE to learn to adapt.  I know that there are going to be times that are going to be so unfair to Levi.  I know I can’t protect him forever.  I truly know that.  I am trying my best to teach Levi how to deal with situations that may arise.  But, my heart just breaks because he is truly the most loving, funny, intelligent & sweet little boy.  He doesn’t deserve people treating him like that woman did.  But what can I do?

Just pray, that’s all I can do.

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Changes

December 8, 2008 at 3:24 pm (ADHD, autism, Children) (, , , , , , , , )

Implementing a gluten-free dairy-free diet for Levi has been very challenging.

First, the books I ordered back on the 20th of November got lost in snail-mail world.  I finally received them two days ago.   I really wanted  some better guides in my hands than just trying to piece together the information I get off the internet.  Now, finding the time to get them read.

I’ve tried to cook meals that fall under the gluten-free diet.  I have not even tried to tackle the dairy-free part of it.   I finally got a GFCF cookbook.  I have purchased special mixes and flours so that he can have bread and his favorite peanut butter sandwiches.  It has not been hard to eat more veggies & fruits.  It has not been hard to eat more fish.  As long as we’re home, the diet is not that hard.  It’s when we’re on the road going from one activity to another that is hard.  Having to pack snacks and meals because there is NOTHING (that he will eat) out there  in restaurants is hard.   Finding the time to actually cook a non-overly-processed gluten-free dairy-free as-natural-as-possible nutritious meal is hard.  Remembering to tell his teachers (church & school), cafeteria personnel, family & friends has been hard.  Having them remember it all is even harder!  Before I know it, he has eaten something that is not allowed.

And then, the cost is CRAZY!!  It’s almost $4.00 for a 8 oz. box of gluten-free pasta.  Not to mention that I have to drive over 30 miles one way to a store that even sells these special items.

I’m not giving up though.  We are just going to have to arrange our schedules so that we can eat more meals at home.  We are going to have to make special pizzas, snacks, etc. so that Levi can take them to school or church.  That way, everyone eats the same thing and he doesn’t feel left out.  We will figure it out!

(During the writing of this post, Levi’s school called me.  He was throwing tantrums and giving his teacher (substitute) fits.  He even picked up a chair and acted like he was going to throw it.  The assistant principle had a hard time getting him to even follow her to the office. When I got there, he was calm and happy.  From what I can gather, he said the substitute was not doing things the way Mrs. Becky does them.  There was also some confusion with snacks that upset him.  It was his day to bring in snacks for the class.  I sent enough applesauce cups for everyone.  Evidently he was made to eat applesauce while the other kids got to eat cheese crackers.  I’m not totally sure of the whole story.  It was decided between the principle and myself, that on days that there is a substitute,  he is to go to Mrs. Connie’s (a former teacher) class.   I also found out that he ate breakfast at school (sweetened cereal & milk).  The principles have assured me that Levi will no longer eat the school’s food.

I just don’t know sometimes.  I feel like I am just totally clueless.)

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Learning the names of Muscles

December 5, 2008 at 6:19 pm (Children, Life) ()

Levi:  “Mom?”

Me:  “Yeah, buddy?”

Levi:  “What is this muscle called?”

Me:  “Well, that’s your calf, and it’s made up of lots of different muscles, but I can’t remember the names of them right now.  We can look them up if you want.”

Levi:  “What is the name of this muscle?”

Me:  “That is your thigh.  One of the muscles is the quadricep, I think.”

Levi:  “What is the name of this one?”

Me:  “Oh, I remember that one.  That is the gluteus maximus.”

Levi:  “Nuh-uh.  That is the BUT-TOCKS!”

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Wordless Wednesdays

December 3, 2008 at 1:40 am (Children, Family, Farm, Life, photography) (, , , , , , )

My oldest girls.  Beautiful girls!

My oldest girls. Beautiful girls!

With Brad Lee

With Brad Lee

My young man

My young man

Erin

Erin

Whiskers & Tom

Whiskers & Tom

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