Is the diet working?

December 19, 2008 at 3:44 pm (ADHD, autism, Children, Life) (, , , , , )

The last few days have been really tough.  I guess the last few weeks actually.  Levi’s behavior is crazy!  Since Monday, the school has called me 3 different times.  His actions have sometimes become violent and totally uncontrollable.  Maybe we are trying too many things at once.  Here’s a recap.

  1. Daytrana patch, one patch per day starting at 7am and coming off no later than 3pm.  The first 4-5 days we saw improvement in his hyperactive behavior, but he lost his appetite.  By Day 7 he was having “spacey” moments, some crying for no reason & loss of appetite.  By Day 9, which was the last day we used it, he was totally lethargic and non-responsive.
  2. We began implementing the GFCF diet.  The first week & a half, we started phasing out the gluten.  The next week & a half, we took casein out.  He has been on the diet fully for about 2 weeks with only one “free” day.
  3. We met with his pediatrician to discuss the results of Daytrana, and to inform him that we had implemented the GFCF diet.  We were told that there is not much research to support the diet.  He did not tell us not to do it, but we didn’t get much support about it.
  4. The pediatrician recommended we try putting Levi on Adderall.  Since beginning this medicine Levi has had bad tummy aches and awful mood swings with very violent episodes.  Now he has become defiant with his teachers and has been very disrespectful.  He took the last Adderall Sunday (5 days ago).

So, what is working and what isn’t?  It doesn’t seem like anything is working!  It seems like his behavior is worse than ever.

I really want to continue with the GFCF diet and give it a chance to prove itself.  I found this informative website and even chatted live with an experienced parent who assured me that this “worse” behavior is proof that the diet is working.   Whew!  Just another view to confuse my already befuddled mind.  She told me to hang with it for a couple more weeks.  By the time Levi heads back to school after Christmas break we should be able to see dramatic positive changes.  We shall see!

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